Disabling the disabled: a "pillow angel" story

Comments

4 comments posted
The pillow angel

Now I read that this poor girl is bedridden and has no cognative thought,and that the reason the parents were doing this is because they wanted to keep her in the home and provide the personal care that they feel she wouldn't receive in an "institution". If that is truly the case it puts a whole different spin on this story. I truly hope that is the real story. Has anyone else heard this? I can't remeber which news site I read it on.

As the father of 4 healthy children, I'm just glad my wife and I never had to face this sort of problem.

As far as judging these parents, I'll leave that to a higher power.

milman's picture
Posted by milman on 7 January 2007 - 3:16am
Paternalistic chauvinism

You're right when you say there is paternalistic chauvinism going on here -- and not just by some doctors.

There's certainly a ripe area for blogging here: how gender and disability intersect. I believe there's historical work done by feminists documenting how gender affects treatment received, e.g., the rights of a female patient being more easily brushed aside than the rights of a male patient.

At any rate I've learned a lot by reading the disabled bloggers' posts, and posts written by those with firsthand experience and knowledge of the lives of disabiled people. I think more of these viewpoints need to be engaged with directly by the online feminist community.

Our culture encourages us to view both the disabled and women as less than human. This news story demands that we self-interrogate our assumptions about both.

- Sour Duck

Sour Duck's picture
Posted by Sour Duck on 7 January 2007 - 12:27pm
Two questions

1) Why, precisely, is this action unethical?
2) What should be done about it?

--|PW|--

pennywit's picture
Posted by pennywit on 15 January 2007 - 8:44am
I honestly think you should

I honestly think you should read more about this. It really is about her. A few points:

She is also terrified of blood.

Clitoridectomy won't do her any good and could include urinary and reproductive tract infections, caused by obstructed flow of urine and menstrual blood, various forms of scarring and infertility.

The high incidence of uterine and breast cancer will not affect her since she doesn't have breasts and a uterus.

Nicholo Alba's picture
Posted by Nicholo Alba (not verified) on 1 September 2008 - 8:49am